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    Naa10 mutations on the X chromosome (also know as Ogden syndrome) are an Ultra rare condition.
    Read about the journeys our amazing families are on and find out what it's like to have been living with a child with an incredibly rare and little known syndrome.

    Meet Our Families

    Happy NAA10 girl
    Happy NAA10 girl
    Text that links to Charlottes NAA10Family story

    Introducing Charlotte and Mum Bérengère

    Read our story

    Photo of one of our HappyNAA10 girls
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    Read our story

    Meet Riley and Mum Maureen

    Photo of NAA10 girl Zuzanna Happily watching bubbles
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    Read our story

    Text that links to Zuzannas NAA10Family story

    Introducing Zuzanna and Mum Malgorzata

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    Text that links to Anikas NAA10Family story

    Read our story

    Meet Anika and Mum Andrea

    Read our story

    zander.jpg
    zander.jpg
    Text that links to Zanders NAA10Family story

    Meet Zander and Mum Sarah

    Read our story

    Alice_3_edited.jpg
    Text that links to Alice's NAA10 Ogden syndrome Family story

    Introducing Alice and Mum Caroline

    Read our story

    Alice_3_edited.jpg

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